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MEDICINE: Reestablishing the Researcher-Patient Compact
Isaac S. Kohane,1,2,3* Kenneth D. Mandl,1,2,3 Patrick L. Taylor,2,4 Ingrid A. Holm,2,5 Daniel J. Nigrin,1,2,3 Louis M. Kunkel2,5,6
Well-intentioned regulations protecting privacy are denying important information to patient subjects. Advances in information technology mean that a better approach to clinical research is possible.
1Center for Biomedical Informatics
2Department of Pediatrics, Harvard Medical School, Boston, MA 02115, USA.
3Children's Hospital Informatics Program at the Harvard-MIT Division of Health Sciences and Technology, Cambridge, MA 02139, USA.
4Office of the General Counsel
5Program in Genomics
6Howard Hughes Medical Institute at Children's Hospital Boston, Boston, MA 02115, USA.
*Author for correspondence. E-mail: isaac_kohane{at}harvard.edu
The editors suggest the following Related Resources on Science sites:
In Science Magazine
LETTERS
Ian M. MacDonald, Brian P. Brooks, and Paul A. Sieving (16 November 2007) Science318 (5853), 1068.
[DOI: 10.1126/science.318.5853.1068] |Full Text »|PDF »
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