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Science 11 May 2007:
Vol. 316. no. 5826, pp. 836 - 837
DOI: 10.1126/science.1135489
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Policy Forum

MEDICINE:
Reestablishing the Researcher-Patient Compact

Isaac S. Kohane,1,2,3* Kenneth D. Mandl,1,2,3 Patrick L. Taylor,2,4 Ingrid A. Holm,2,5 Daniel J. Nigrin,1,2,3 Louis M. Kunkel2,5,6

Well-intentioned regulations protecting privacy are denying important information to patient subjects. Advances in information technology mean that a better approach to clinical research is possible.

1Center for Biomedical Informatics

2Department of Pediatrics, Harvard Medical School, Boston, MA 02115, USA.

3Children's Hospital Informatics Program at the Harvard-MIT Division of Health Sciences and Technology, Cambridge, MA 02139, USA.

4Office of the General Counsel

5Program in Genomics

6Howard Hughes Medical Institute at Children's Hospital Boston, Boston, MA 02115, USA.

*Author for correspondence. E-mail: isaac_kohane{at}harvard.edu

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THIS ARTICLE HAS BEEN CITED BY OTHER ARTICLES:
People and Organizational Issues in Research Systems Implementation.
J. S. Ash, N. R. Anderson, and P. Tarczy-Hornoch (2008)
J. Am. Med. Inform. Assoc. 15, 283-289
   Abstract »    Full Text »    PDF »
Tectonic Shifts in the Health Information Economy.
K. D. Mandl and I. S. Kohane (2008)
N. Engl. J. Med. 358, 1732-1737
   Full Text »    PDF »
Early Experiences with Personal Health Records.
J. D. Halamka, K. D. Mandl, and P. C. Tang (2008)
J. Am. Med. Inform. Assoc. 15, 1-7
   Abstract »    Full Text »    PDF »

E-Letters:

Read all E-Letters

Unanswered Questions About Data
Kirk Lane
Science Online, 13 Jul 2007 [Full text]
Response to E-Letter by Lane
Isaac S. Kohane, et al.
Science Online, 13 Jul 2007 [Full text]

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