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Science 9 July 2004:
Vol. 305. no. 5681, pp. 168 - 169
DOI: 10.1126/science.305.5681.168

News Focus

PATIENT RECORDS:
Privacy Rule Creates Bottleneck for U.S. Biomedical Researchers

Jocelyn Kaiser

A complicated new regulation is hindering a broad swath of science, from population-based and genetics studies to tissue repositories (see related Policy Forum on p. 183).

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Informed Consent: The Making of a Ubiquitous Rule in Medical Practice.
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Impact of the Health Insurance Portability and Accountability Act on Participant Recruitment and Retention.
D. D. Wipke-Tevis and M. A. Pickett (2008)
West J Nurs Res 30, 39-53
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Influence of the HIPAA Privacy Rule on Health Research.
R. B. Ness and for the Joint Policy Committee, Societies of Epide (2007)
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Barriers and Strategies for Recruiting Study Participants in Clinical Settings.
S. Sullivan-Bolyai, C. Bova, J. A. Deatrick, K. Knafl, M. Grey, K. Leung, and A. Trudeau (2007)
West J Nurs Res 29, 486-500
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Science. ISSN 0036-8075 (print), 1095-9203 (online)