Note to users. If you're seeing this message, it means that your browser cannot find this page's style/presentation instructions -- or possibly that you are using a browser that does not support current Web standards. Find out more about why this message is appearing, and what you can do to make your experience of our site the best it can be.

Science 3 August 2007:
Vol. 317. no. 5838, pp. 600 - 602
DOI: 10.1126/science.1147699
Prev | Table of Contents | Next

Policy Forum

ETHICS:
Identifiability in Genomic Research

William W. Lowrance1 and Francis S. Collins2

Genomic data are unique to the individual and must be managed with care to maintain public trust.

1W. W. Lowrance is a consultant in health research policy and ethics, 72 rue de St. Jean, CH-1201 Geneva, Switzerland; e-mail: lowrance{at}iprolink.ch.

2F. S. Collins is director, U.S. National Human Genome Research Institute, Bethesda, MD 20892-2152 USA; e-mail: francisc{at}mail.nih.gov

Read the Full Text


THIS ARTICLE HAS BEEN CITED BY OTHER ARTICLES:
Ethics in collaborative global health research networks.
M. Parker and S. Bull (2009)
Clin Ethics 4, 165-168
   Full Text »    PDF »
Ethical Issues in Stem Cell Research.
B. Lo and L. Parham (2009)
Endocr. Rev. 30, 204-213
   Abstract »    Full Text »    PDF »
Biobanks and the importance of detailed phenotyping: a case study--the European Glaucoma Society GlaucoGENE project.
P Founti, F Topouzis, L van Koolwijk, C E Traverso, N Pfeiffer, and A C Viswanathan (2009)
Br J Ophthalmol 93, 577-581
   Abstract »    Full Text »    PDF »
Ethical, legal, and social considerations in conducting the Human Microbiome Project.
A. L. McGuire, J. Colgrove, S. N. Whitney, C. M. Diaz, D. Bustillos, and J. Versalovic (2008)
Genome Res. 18, 1861-1864
   Full Text »    PDF »

E-Letters:

Read all E-Letters

Identifiability in Genomic Research
John Gallacher
Science Online, 13 Nov 2007 [Full text]

To Advertise     Find Products

Science. ISSN 0036-8075 (print), 1095-9203 (online)